So as I said in my last blog
So, as you often do, I went on facebook!
And at the top of my news feed I found this woman.
Her name is Jodie Barden. She has a daughter called Ella who
was diagnosed with Cockayne syndrome. Cockayne syndrome is a rare genetic
syndrome characterised by poor growth, premature ageing and learning delays
among others.
Cockayne syndrome is fatal, the average life expectancy of a
child with this syndrome is 12 years old.
After having Ella, Jodie fell pregnant with another little
girl, called Chloe. Chloe has also been born with this condition and was
diagnosed in the womb at 27 weeks.
I have never felt so humbled. There was I feeling sorry for
myself because I’d had a couple of bad reviews on the internet while doing a
job I love in a sunny country with my amazing husband. At the same time Jodie
Barden was waking up each morning with the worst knowledge a mother can have,
and every day she comes out fighting.
While I was moping that people didn’t like me, Jodie Barden
was literally dragging herself through the mud for her little girls.
So I’d just like to say thank you to Jodie for giving me
some much needed perspective. Because if Jodie can get up every morning and face
the day with strength and determination then how the hell can I ever feel sorry
for myself.
Mrs P
X x x x x x x x
P.S. If you would like to donate any money towards research
into Cockayne syndrome you can sponsor Jodie at https://mydonate.bt.com/fundraisers/jodiebarden1
for running the Maldon Mud Race.